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Key Questions
  • How important are behavioral practices such as sleep, exercise, hydration, and stress reduction to improving migraine?
  • Why is neck pain such a frequent symptom in migraine?
  • Which are the best supplements to take to improve migraine?
Interview Notes

Find more about Robert Cowan, MD and his work here:

Cluster Headache: One Man’s Journey Through Pain

Key Questions
  • What is it like to experience cluster headaches?
  • Why are they called suicide headaches, and how do they isolate the patient?
  • How can the patient and support groups like OUCH educate physicians about cluster headaches?
Interview Notes

Find more about Scott Bruch and his work here:

Body Pain, Allodynia and Fibromyalgia

Key Questions
  • What is “allodynia” that most people with migraine experience at some point?
  • Why do some people with migraine experience body pain or sensitivities between migraine attacks as well as during them?
  • Can allodynia be a symptom of migraine?
  • Is fibromyalgia a comorbid condition with migraine?
  • What other common medical conditions involve central sensitization?
  • How do these conditions affect migraine? (and vice versa)
  • Where does the pain originate and why?
  • What factors are likely to lead to more frequent and chronic attacks?
  • What role does inflammation play?
  • How do you know when you have fibromyalgia?
  • How can allodynia and fibromyalgia be effectively treated?
  • What medicinal and complementary options are available?
  • Does heat or cold help with any of these conditions?
  • What are some ways to reduce body pain and stay active?
  • Which doctors are patients likely to see for these types of pain conditions?
  • What should patients watch out for if they have multiple doctors treating different aspects of pain and migraine?
Interview Notes

Find more about Gretchen Tietjen, MD and her work here:

Vertigo, Sinus, Allergy and Other Facial Symptoms

Key Questions
  • What is osmophobia and how is it related to migraine?
  • What other conditions is osmophobia associated with?
  • How prevalent is osmophobia among people with migraine?
  • How do you know whether smells trigger a migraine attack, or whether someone with migraine is hypersensitive to smell during an attack?
  • Do people with migraine experience osmophobia only during migraine attacks, or is it at other times, too?
  • Is osmophobia a feature of other types of headache?
  • How does the brain perceive smell?
  • How is osmophobia related to depression and anxiety?
  • Why are some people more sensitive to smell than others?
  • What are some of the most problematic smells for people with osmophobia?
  • Why are women more prone to osmophobia than men?
  • Are natural smells less apt to trigger a migraine attack than artificial smells?
  • What are “phantom smells” and why do they occur?
  • What other neurological conditions are associated with phantosmia?
  • Is a heightened sense of smell considered an aura?
  • What can we do to overcome osmophobia?
  • Are there any medications or therapies for it?
  • Why is there so little research on osmophobia, especially associated with migraine?
  • Has COVID-19 made any difference in research funding for issues related to the olfactory system?
  • Does neuroinflammation affect the sense of smell?
  • Can osmophobia worsen with age, or even with the progression of migraine?
Interview Notes

Find more about Frederick Godley, MD and his work here:

Treatments Mentioned
  • Behavioral therapy
  • Gabapentin
  • Hypnotic therapies
  • Peppermint
  • Phenytoin
  • Relaxation techniques
  • Smell retraining
  • Triptans
  • Venlafaxine

When Symptoms Change: Warning Signs to Watch For

Key Questions
  • What are 9 dangerous conditions that cause headache?
  • When should someone go to ER?
  • Who are more at risk of a potentially dangerous secondary headache?
  • How common are serious or potentially fatal headaches?
  • What is the difference between primary and secondary headaches?
  • What does SSNOOPP mean and why is it important?
  • What are the causes of thunderclap headache?
  • What is a Chiari malformation and how does it relate to headache?
  • Does correcting a Chiari malformation improve headache?
Interview Notes

Find more about William Young, MD and his work here:

They Don’t Get It: Educating Family & Friends on Migraine

Key Questions
  • Why is our own self-education about migraine so important?
  • How is the experience of migraine different in those who are informed versus those who are not?
  • Where does migraine education begin?
  • Why don’t most doctors teach or tell us more?
  • How are relationships affected by migraine?
  • Why is being proactive with friends and family so important?
  • How can we be more proactive in our migraine condition?
  • How can internal challenges like guilt be managed?
  • Why do we often hurt those closest to us more than others?
  • Where can we find more support outside close friends and family?
  • What is the best prescription according to Former Surgeon General C. Everett Koop?
  • What are some practical tips to maintain the friendships you want to keep?
  • How can those with migraine better navigate dinners, parties, or movie nights?
  • What works best: making up an excuse or telling the truth about why we had to cancel?
  • What should we expect from ourselves?
  • No one is perfect. How do we know what are reasonable expectations in ourselves?
  • What are coping skills? Do they really work?
  • What do you use to help you cope more effectively?
  • How can migraine sometimes lead to depression, anxiousness, and isolation?
  • How do we know when to let go of a relationship?
Interview Notes

Find more about Teri Robert and her work here:

TMD/TMJ Jaw-Related Headache Issues

Key Questions
  • What is the difference between TMJ and TMD?
  • What are some of the signs and symptoms of TMD?
  • How can Botox help relieve the symptoms of TMD?
Interview Notes

Find more about Paul Mathew, MD and his work here:

Surviving Weather-Related Migraine

Key Questions
  • What do we understand about the pathophysiology of what’s happening when lightning triggers a migraine?
  • Are there seasons when people might be more vulnerable to weather or migraine might be more prevalent?
  • What do we know about mold and migraine?
Interview Notes

Find more about Vince Martin, MD and his work here:

Menopause, Hormones and Migraine

Key Questions
  • What are hormones?
  • How do a woman’s hormones change over time?
  • Is it true that for those with menstrual migraine, attacks will fade after menopause?
  • What determines whether you will improve in menopause or not?
  • Why can perimenopause be difficult with migraine?
  • What myth is there are about menopause and estrogen levels?
  • What role does estrogen play in monthly migraine attacks?
  • What is the average age of perimenopause and menopause?
  • Do women with hormonal migraine have abnormal hormones levels?
  • How do you know if you have abnormal hormonal function and balance?
  • How can hormonal migraine be managed?
  • What is the most important first step to treatment?
  • What is HRT? And how can it be used?
  • What are bioidentical hormones and how safe are they?
  • What type of medical expert should someone work with for hormonal migraine?
  • How effective are treatment options?
  • How can a hysterectomy make migraine worse?
  • What supplements and natural alternatives have been shown to help?
Interview Notes

Find more about Anne MacGregor, MD and her work here:

Daily, Unresponsive Refractory Headache

Key Questions
  • What are the common types of daily unremitting headache?
  • Which is commonly misdiagnosed?
  • Which is often left undiagnosed?
  • How are headaches classified?
  • What is primary headache versus secondary headache?
  • What is rebound headache?
  • How can headaches that occur on 15 days a month or more be treated?
  • What treatment options are there for New Daily Persistent Headache?
  • When is an in-patient stay at a headache clinic worth considering?
  • What risks do people with refractory headache have?
  • What is a chronic pain state and what treatments could be utilized for this?
  • What are the S.E.E.D.S. for success in headache management?
Interview Notes

Find more about Juliana VanderPluym, MD and her work here:

Migraine, Heart and Stroke Risk

Key Questions
  • What do you do if you have migraine and a family history of heart disease, stroke or high cholesterol?
  • What treatments are on the horizon for people with both migraine and heart problems?
  • What are some lifestyle modifications that people can make to help reduce both the likelihood of migraine and heart problems at the same time?
Interview Notes

Find more about Juliana VanderPluym, MD and her work here:

Concussions, Brain Injuries and Migraine

Key Questions
  • What are some of the most common and surprising ways that people get head injuries that can lead to migraine?
  • How does a traumatic brain injury affect migraine?
  • Is it possible or advisable to screen young athletes for genetic vulnerability to migraine, concussion, and accumulated brain injury?
Interview Notes

Find more about Joel Saper, MD and his work here: