If migraine is genetic, then how can some patients have no family history of it?
Migraine has a genetic component but not everyone has a familial history of it. There are a variety of reasons for this such as gene mutations and not having a complete picture of one’s family history.
“... so several years ago I realized that there was not enough information for the majority of patients and that I could not be everywhere. Like I was telling you, I went to give talks and I didn't see that there was much reaction. At least the other doctors were not using that information to pass on to their patients. So I thought the only way that I can be everywhere, in the sense that I can share with the world what I know, is through a website [www.midolordecabeza.org]. It has three goals. First of all, it has to bring together all of the people interested in migraine. Not only patients, but, as you were saying, also other physicians that are in contact with migraineurs and that are not used to understanding how the brain works. But also maybe even the pharmaceutical industry or anyone that is interested in migraine. You know, it should be like ... you know, there's a Greek word. ‘Agora’, which means it's, like I said, it's like a market for everything.
“That was one of the goals. The second goal was to give tools both to patients and to physicians in order to manage their migraine better, not only with education but also with specific tools like doing a calendar, or we have different things that they can do in order to share with themselves to see how they change and how their migraine evolves in time. But also with their physician. So it gives tools to people, which I think is very practical, too. And the third thing is that it has a forum and blog and so on, but also for ... it's like patient group therapy, so in order for patients to be able to share what is happening with them and so on.”
Dr. Pozo Rosich developed a website in Spanish, www.midolordecabeza.org, that contains educational information on headache and migraine. There are educational resources for both patients and physicians. A number of patient tools such as headache logs, blogs and forums are also available on the website.
Patricia Pozo-Rosich, MD, PhD
Head of Neurology Section
Vall d’Hebron Hospital and Institute of Research, Spain
As the director of headache and neurological pain research at Vall d’Hebron Institute of Research in Barcelona, Spain, Dr. Pozo-Rosich is one of the leading migraine researchers in Europe. An active leader in the field of international headache medicine, Dr. Pozo-Rosich is passionate about educating patients and clinicians about migraine. Additionally, she is the founder of the Spanish-language website midolordecabeza.org.