Why is migraine patient advocacy important?
Description
Those with migraine can help improve their condition by taking ownership and control of their care. They should engage themselves and try to change things through advocacy.
Transcript
“... if they want to change their lifestyle, their [challenges], they have to invest themselves. I mean, you have to either- I think- try and help with research or do patient advocacy. Everyone helps in different ways, but the problem with at least my patients sometimes is that they're actually not doing sometimes anything. I think you have to try and engage yourself to try and change things.
“Sometimes I look at me and I say that I do everything that I can every single day. Now it's also your turn to do things. You know, doctors can do up to a certain point but we cannot change laws, we cannot change policies. For example, in Spain I would love to think that in the future, migraine can be considered, especially chronic migraine, as a chronic disease. And that changes the health care completely because they have a different approach, they can maybe have days off and so on. They treat you in a different way, and I would love for that to happen, and that I cannot change. Patients have to change it or try to change it themselves through advocacy and marching and all of those things.”
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Patricia Pozo-Rosich, MD, PhD
Head of the Neurology Department
Vall d’Hebron University Hospital and Institute of Research
Patricia Pozo-Rosich, MD, PhD, is a neurologist and one of Europe’s leading migraine experts. She leads the Neurology Department at Vall d’Hebron University Hospital in Barcelona and directs the Migraine Adaptive Brain Center, a national reference center focused on advancing migraine research and care. She also heads the Headache Research Laboratory at the Vall d’Hebron Institute of Research (VHIR) and serves as president-elect of the International Headache Society.
Dr. Pozo-Rosich is deeply committed to helping people understand migraine as a complex neurological disorder and improving access to effective treatment. She founded the Spanish-language education site MiDolordeCabeza.org and has authored more than 250 scientific publications. Her work has received multiple national awards, and she serves as associate editor for leading headache journals. She has been principal investigator in more than 100 clinical trials and is an active member of international headache genetics consortiums.
Interviews from Patricia Pozo-Rosich, MD, PhD
European Headache Treatment Update
Navigating COVID with Migraine in Europe
How Pain Works in the Migraine Brain
How to Get the Most from Your Doctor
Solving the Puzzle of What’s Causing Migraines
