Carl Cincinnato
When few people in our immediate family or group of friends have migraine to the same degree of severity as ourselves it is easy to feel isolated at times. It’s also hard to keep up with what is happening in different areas to change the status quo – to increase research, improve treatments and advocate for the support and rights of those with migraine disease.
The good news is that momentum continues to build for migraine. The media is covering migraine and headache disease, new treatments, patient stories. The upcoming Migraine World Summit will provide updates on those topics from world experts.
But what is being done on the policy front?
One of the biggest advocacy events on the calendar each year is Headache on the Hill (HOH). Each year, hundreds of advocates from all 50 states visit several hundred offices on Capitol Hill.
We were pleased to have team members each year from the Migraine World Summit represent their home states and advocate for people with migraine and headache disease.
Headache on the Hill is an incredible annual event organized by the Alliance of Headache Disorders Advocacy, who meticulously plan and facilitate this powerful force of advocacy.
The founder of the Alliance for Headache Disorders is Dr. Robert Shapiro who had a fantastic interview at the Migraine World Summit about the impact of stigma and the urgent need for advocacy in headache. You can login to watch the full interview or preview the interview here.
