Migraine FOMO: Are You Missing Out?

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Key Questions
  • What are some ways to manage when a migraine attack disrupts plans?
  • What are some of Katie’s personal experiences in having to miss important events?
  • How can FOMO be a motivator?
  • How did Katie’s migraine condition affect her career?
  • Why is migraine advocacy important?  How can it personally benefit people with migraine disease?
  • How do we balance advocacy work with our health?
  • How can behavioral therapists be useful for someone with migraine?
  • What are some ways to educate others about migraine symptoms and needs?
  • How can we avoid the trap of comparing ourselves to others?
  • What is the link between missing out on life and seeking out a new doctor or treatment plan?
  • How can we advocate for ourselves with our healthcare providers?
Interview Notes


Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

Katie MacDonald

Director of Operations
Miles for Migraine

Katie MacDonald is the director of operations for the nonprofit Miles for Migraine and a longtime patient advocate living in Jericho, Vermont.

She was diagnosed with migraine 35 years ago and currently lives with chronic migraine. As a result of migraine, Katie left her leadership career in the corporate world in 2016. After a brief hiatus from the workforce, she started a new career with two migraine nonprofit organizations: Miles for Migraine and the Alliance for Headache Disorders Advocacy. For these organizations, she has worked on federal policy advocacy, raising funds for migraine research and fellowship programs, and reducing the stigma associated with migraine and headache disorders.

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Miles for Migraine is a registered 501(c)(3) nonprofit organization with the mission of improving the lives of people with migraine and other headache disorders, and their families, by raising public awareness about this disease, and helping to find a cure. Miles for Migraine produces fun walk/run events, typically a 2-mile walk and 5K and 10K races to raise money for migraine research. We also host adult education days, and a youth program for kids and teens impacted by migraine and other headache disorders.

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Lilly unites caring with discovery to create medicines that make life better for people around the world. We’ve been pioneering life-changing discoveries for nearly 150 years, and today our medicines help more than 51 million people across the globe. To learn more, visit Lilly.com and Lilly.com/newsroom or follow us on Facebook, Instagram, and LinkedIn.

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